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Self-care for families and carers in palliative care

What is it?

Caring for someone who has a life-limiting illness is hard but rewarding. It is normal to feel very upset during this time. You may also feel scared, helpless, confused, worried and shocked.

As a carer, your effort will play a huge role in your loved one’s final years of life. Make sure you have the support you need to maintain your mental and physical health. You also may need to adjust your work and home life, get more in-home support, and consider financial support. Talk to the care team if you need more support or help caring for your loved one.

What will my healthcare team do?

Your GP may talk to you about how you can best support your health while you care for your loved one. They may help you learn more about your loved one’s symptoms and condition. They may talk to you about what is likely to happen in the future. They may also:

  • Let you know your support options
  • Tell you how to look after your health during this time
  • Help you make informed choices for your loved one, this can include making an Advance Care Directive
  • Assure you that your loved one’s wishes will be respected

Your GP may see you often to check in with you and make sure you are coping. If you are finding it too hard to cope, your GP can refer you to a support service.

What questions could I ask my doctor?

  • How can I best support my health right now?
  • Who can I talk to if i'm struggling to cope?
  • How can I manage feelings of guilt?

What can I do?

Talk to your GP often about how you are feeling. Always ask for help if you are struggling, your GP can refer you to a local support service. Living a healthy lifestyle will help you cope.

Be sure to:

  • Eat a healthy diet and stay active
  • Limit drinking alcohol and quit smoking
  • Get eight hours of sleep each night
  • Reduce stress
  • Continue to participate in hobbies or join a support group
  • Have regular check-ups with your GP

 

What supports are available?

  • Carers NSW

    For carer information and support please phone Carers NSW from 9.00am to 5.00pm Monday to Friday.

  • Carer Gateway

    For Carer Gateway services including carer support planning, counselling, peer support, tailored support packages and respite services, including emergency respite please call Carer Gateway from 8.00am to 5.00pm Monday to Friday.

  • CarerHelp

    Online and phone support for carers.

  • Young Carers Network

    The Young Carers Network is a nationally coordinated resource to raise young carer awareness, provide information, and direct young carers to appropriate pathways for support.

Where can I learn more?

  • Clinical Excellence Commission

    Last Days of Life Toolkit: Information for Patient’s Families and Carers (multiple languages)

  • Palliative Care Australia

    Self-Care Matters

Important: This information is to be viewed by someone who has received a diagnosis from their doctor. It is not designed to be used to diagnose a condition or as a substitute for ongoing medical care.

Health Resource Directory factsheets are endorsed by South Western Sydney PHN’s Community Advisory Committee and local GPs

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